Although we know no place is perfect, including home, as caretakers we do worry. Especially when patients do not take the required medicine, follow directions, argue, or refuse help. We want to help and do everything possible for our loved one. However, all we can do is the best we can do.
This letter-sized PDF poster is printable should a reminder be helpful. Remembering no one person, no home, no alternative living, nothing we can do will be perfect. We can just try, do our best, and keep putting one foot in front of the other no matter how difficult the day might be. This might not be the worst day, although it might seem like it now. The storm of dementia is just different for every patient and there are no clear answers or paths.
Here is the free instant download PDF. Get a copy by clicking on the following graphic.
When it is a horrible day, what might caretakers do? There might not be much time to even breathe. However, checking in with a dementia Facebook group might be a quick reminder that things could always be worse. Asking for help in online groups might have to wait for another day when we might have more time.
There are good sites online that are very helpful. I have consulted these sites myself and highly recommend them.
Embrace or Embracing Journeys is a Facebook group for family and professional family caretakers. It is like talking to the leader at the kitchen table with a cup of coffee. When you see the videos you will understand Krisie is approachable and understandable. Herwebsite offers many opportunities for caregivers to be “human helping humans.” She lives in Minnesota and so do I, which I like. This site was recommended to me byThe Redhead Rev, a minister.
Of course, you probably know about Teepa Snow, with her brilliant positive approach for caretakers to use. Her books and videos are extremely helpful. Teepa Snow’s Positive Approach to Care YouTube channel is wonderful. Start with any video or search for a topic that is on your mind to learn about her positive approach. I have a short review of herGems book at this post. The entire name of the book I call “the gems book” is Dementia Caregiver Guide: Teepa Snow’s Positive Approach to Care techniques for caregiving, Alzheimer’s, and other forms of dementia by Teepa Snow. I reviewed other books that have helped me at that post, as well.
Some clinics have online groups for in-person or Zoom sessions with experienced leaders, such as the Mayo Clinic. Fairview Clinic has informational videos for caretakers. Check with your health group to see what they might offer. The Alzheimer’s Association has learning opportunities and books. Some state governments have help and websites to support caretakers. Every state is different, so check the site by searching for keywords such as dementia, caretakers, nursing homes, and so on. Minnesota has a government page with links to alternative living facilities. The Senior Linkage line is another place to consult if you live in Minnesota. We all know we can call 911 when things get really tough, and did you know you could leave the house and then call the number, as that might be safest? We all hope we do not need to call. We all wish the patients would be easy to care for and that we could give them the best care ourselves. We wish there was a cure! But we live in the real world.
I hope wherever you live there are supportive services and helpful information.